dysfunksjonell.no
1Jun/1212

A sudden turn of events!

I cannot believe we have June already! June. Already. We had a wonderful weekend with a lot of sunshine and high temperatures, but then it fell back below 10'C, accompanied by rain and wind. So summery, right? No.

Yesterday was one of the happiest, weirdest, most exhausting days in a long time. It started with my phone waking me up. A quick, and insanely sleepy glance at the display told me that someone at my old hospital was trying to reach me. I immediately froze, and didn't know what to do. The obvious thing for most people would surely have been to actually answer the phone, but it left me somewhat baffled. Baffled, because the last time I spoke with them I was told that they had no way of taking me back as a patient, leaving me without a safety net anymore. There was no way in hell I'd be going back to St. Olavs Hospital after the way I was treated there - those of you who followed my story from November 2010 to November 2011 know what I'm referring to - even if it would mean that I was now without a connection to a hospital. A quite interesting situation for a person with poor pulmonary function. After roughly explaining my side of the whole ordeal I was told that they'd talk it over again, and I hadn't heard anything from them until my phone rang. I was dreading the final decision so much I felt nauseous.

I got out of bed, and knew I had to call them back to see what was up - but the thought of calling them actually made my heart race, and my hands shake. Like, for real. So I tried to calm myself down, impossible, and I dialed the number. A familiar voice picked up, and was almost chirping into my ear: they had decided to take me back, and wanted me to come to Bodø at the end of June. The only thing I could think of to say was: "I LOVE YOU!", upon which she replied: "well, I kinda love you too" and I could hear her smiling. No, I'm not insane. I was - am - just so frigging happy to know that I would never have to deal with that horrible doctor at St. Olavs Hospital again, that they listened to me when I told them what had happened. Just knowing that I now have an awesome team of doctors to rely on again instantly lifted a ton of weight off my shoulders, and I finally felt like I could breathe (no pun intended) again. I don't know how many sleepless nights I've experienced because I've been laying awake thinking, dreading, and being scared of living a life knowing that no one would have my back if I'd encounter a medical emergency. It's a pretty scary thought, I'll tell you. I mean, I can handle most things thrown at me, I have my shit to deal with every single day, but when your lungs starts to malfunction you'd better have someone you know'll have your back.

Sure, it's pretty inconvenient to have to go to Bodø for my annual checkup, but I wouldn't want to have it any other way. Besides, it's not so far away from home, making it a golden opportunity to actually go see my parents - and maybe also a few old friends. I'm not sure it has really dawned on me yet, but 2012 is still turning out to be a pretty good year! Thank you so much, you know who you are, for going that extra mile for me. I can't even begin to explain how immensely much it means to me, and how grateful I am. The last 18 months have thought me a lot about being grateful, and I realize how lucky I really am. Now I feel ready to muster up the strength and courage needed to file my complaint, and I pray something will be done.

Posted by Shamini on June 1, 2012 – 12:00 PM

Comments (12) Trackbacks (0)
  1. Aww, så bra! Det at de i det hele tatt husker deg etter så mange måneder er jo imponerende i seg selv. Virker som en bra avdeling som faktisk bryr seg, hurra! Smile

    • Det ville være litt merkelig om de ikke husket meg med tanke på at jeg har hatt det samme teamet i sikkert.. 15 år, om ikke mer. Smile Jeg er uansett veldig glad for å vite at jeg har fagfolk i ryggen som respekterer meg, lytter til meg og faktisk tar livet mitt på alvor.

  2. Jippi, kjempebra, glad på dine vegner Smile

  3. Åh, jeg ble så glad da jeg fikk vite dette! Kan tenke meg det var en lettelse! Smile <3

    • Tusen takk, Marie! Heart Det var det i aller høyeste grad.. det har vært enormt slitsomt å engste seg, å ikke vite hva som ville skje. Jeg holder meg stort sett frisk, så lenge jeg passer på å unngå folk med forkjølelse, influensa eller andre smittsomme luftveisproblemer – men om lungene svikter, så har man ikke så mange sjanser, og da er det på en måte greit å vite at man har et godt team som vet å ta vare på en rundt seg.

  4. Fantastisk! Er lov og være glad og letta nå Grin

  5. Oi, dette innlegget har blitt borte for meg til nå…. Men hurra, hurra, hurra! Jeg er SÅ glad for at ting ordner seg for deg, selv om jeg ikke kjenner til mye av historien gjør det utrolig godt å se at ting ordner seg for fine mennesker! Dette året blir bra Smile

    • Tusen, tusen takk, Tone! Jeg er så utrolig glad for at bekymringene sakte men sikkert forsvinner, og at jeg igjen kan senke skuldrene og konsentrere meg om å leve. Smile 2012 har så langt vært helt fantastisk!


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